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星期二, 8月 01, 2017

查理貝克簽署法案關懷ALS 表揚冰桶挑戰週

Governor Baker Signs Legislation Recognizing ‘Ice Bucket Challenge Week’ in Honor of Frates’ Family and ALS Awareness
Annual week in August will recognize efforts to raise awareness for battling ALS

BOSTON – Governor Charlie Baker today signed H.1697An Act Establishing The First Week In August As Ice Bucket Challenge Week, to annually honor the contributions of Pete Frates and his family and raise awareness and resources for those battling Amyotrophic Lateral Sclerosis (ALS). The ALS Ice Bucket Challenge was co-founded in 2014 by Pete Frates, Pat Quinn and Anthony Senerchia to raise awareness for the progressive neurodegenerative disease and funds to support research towards a cure.

In accordance with the new statute, Governor Baker also issued a proclamation today proclaiming the first week of August 2017 to be “Ice Bucket Challenge Week.”

“Pete Frates took a horrible, personal tragedy and turned it into something positive and inspiring for millions of people around the world with the Ice Bucket Challenge,”said Governor Baker. “I am honored to sign legislation to recognize the efforts of Pete, his family and all those fighting to increase awareness and find a cure for ALS.”

“The Ice Bucket challenge has left a remarkable impact on the families and loved ones fighting against ALS, a disease that has personally touched many throughout Massachusetts and the world,” said Lt. Governor Karyn Polito. “I am proud this legislation will continue to show solidarity and support for the Frates family and all those working toward a cure.”

“The Frates family have been amazing advocates for those fighting ALS, bringing an incredible level of awareness to this devastating disease,” said Senator Joan Lovely (D-Salem). “I am very pleased that the legislature and Governor Baker has chosen to honor Pete Frates and the whole Frates family, who continue to fight this disease, and officially recognize Ice Bucket Challenge Week.”

"I’m so proud to have co-sponsored this bill with Senator Lovely and to have had the opportunity to work with such a remarkable family,” said Representative Jerry Parisella (D-Beverly). “I’m honored to recognize the incredible work that Pete and the Frates families have done to raise money and awareness about this dreaded disease. Lives will forever be positively affected because of their efforts.”

In August of 2015, Governor Baker and Lt. Governor Polito were be joined by Pete Frates and his family to take the ALS “Every August Until a Cure” Ice Bucket Challenge at the State House. Members of the Baker-Polito Administration, Treasurer Goldberg, Auditor Bump and members of the legislature also participated to raise awareness and support a cure for ALS.